Daddy needs sleep

Once Maisie had settled down for the night she was linked up to her monitor to measure her oxygen saturation. At the current level of oxygen Maisie is meant to be on her saturation levels were just at the lower level expected. The level dropped every now and then when Maisie became more active.

Maisie originally left the hospital on a flow rate set at 0.2 litres which increased to 0.3l while feeding. For the last few weeks Maisie's oxygen level was also turned up to 0.3l whenever she was distressed with her hernia. It also helps Maisie to turn it up when she is tired or feeling under the weather.

As Maisie's saturation seemed to be at a reasonable level most of the time the nurses tried to lower the level to 0.1 litres. Maisie didn't cope with this too well and the monitor started to alarm continually indicating that this level was not suitable. The alarming kept Daddy awake and disturbed Maisie. The rest of the night was quite unsettled for both Daddy and Maisie.

"come on Daddy it's about time
we were going home!"

In the morning it was decided that Maisie should go home on 0.3 litres as this is the level that showed reasonable saturation levels and where Maisie seemed most comfortable.

Maisie's next sleep over will be just after Hogmanay. Hopefully Maisie will have recovered fully from the Hernia and can have her oxygen turned down again.

Maisie met with the dietitian. Maisie has got another 2cm longer and her head another 1cm bigger. It doesn't sound very much but this is a reasonable growth. Although she is showing growth by getting taller and having a bigger head she's still not putting on weight quickly enough.

Maisie has put on 30g in the last week - it would be preferable to put this amount on daily. Maisie is now 4.34kg - 9lb 9oz.

Maisie's not eating could be due to her being post operative and also having her synagis injection last week. The dietitian hopes that she'll put on more weight in the coming week. She is on the highest calorific value feed she can have.

Daddy still thought that there was something else bothering Maisie and keeping her off her food. She is still quite grumpy even though the hernia was repaired over a week ago. Daddy discussed it with Mummy when they got home and decided to call Edinburgh Sick Kids. The Sick Kids had taken a urine sample too check if Maisie had an infection but had not been back in touch with any results.

They looked into it and called back with the news that Maisie did in fact have a infection! Could this be the cause of all Maisie's issues at the moment; not eating, not growing, being tired; being grumpy, requiring more oxygen?

They recommended that Daddy called the Doctors to arrange antibiotics. Daddy did this and Maisie started her course of treatment this evening. Hopefully this will help Maisie and will lead to growth.