all set for tomorrow

Aunty Rhona - how big do you think Maisie is? 

Maisie is getting bigger and now weighs 4lbs which is 1,815g.

Thank you to Aunty Rhona who sent a couple of outfits for Maisie.

One of them is particularly awesome - Maisie will just have to grow a bit bigger before they will fit. Maisie will model the full outfits when she gets big enough to strut her stuff on the catwalk.

Maisie is almost big enough to fit into some of her knitwear so if you were one of the kind people to have knitted for Maisie your handy work may appear in a photo soon.

What is this meant to be Daddy? 

The heart doctor studied Maisie's ECG from yesterday and it showed that the sildenafil  has not really had any effect.
Maisie will be weaned off this drug so to reduce the number of medicines that she is taking.

Not sure what the plan is to help Maisie's lungs - Mummy and Daddy will meet the consultants soon to discuss the next steps.

Earlier today Maisie showed the consultants some pilate moves and finished off by doing a few press ups - she is getting stronger.

Tomorrow is the big day for Maisie's eyes. The procedure will be performed at 2pm and should not take very long. Maisie knows that you will all be thinking about her and praying that the procedure goes well.

Mummy and Daddy haven't told Maisie that this procedure is a little experimental and that the drug she is receiving is not actually licensed for the treatment of ROP (Retinopathy of Prematurity) - they didn't want to worry her. It is described as an"off license" use of a licensed drug. Don't worry it's all above board and in any case Daddy and Mummy have given consent.

Don't tell Mummy

Maisie was a little naughty again being a little sick and then pulled her feed tube out for a second time today. Mummy was out milking while this happened so don't tell her that one of the kind Nurses changed Maisie's bed while Daddy grabbed a bit of cuddle time with Maisie.