so cosy

Maisie had no significant de-sats today and any that she did had Maisie managed to stabilise herself.

Maisie's oxygen supply was at 95% at one point last night and at 97% for a while this afternoon. It is mainly at 100% but it's good to know that there are short bursts of improvement. Maisie had a bit of tachycardia during the afternoon (high heart rate) which we will keep an eye on. Maisie has a strong heart as we already know and it is just making sure that it keeps her oxygen levels up.

Blood gases are showing high carbon dioxide levels again which Maisie's kidneys have adjusted to and are maintaining a good pH level for the blood.

Daddy had Maisie to himself for a lot of the day and they spent a while putting Maisie's photograph album together along which discussing what Mummy, Daddy, Zach, Meghan and Megan will need to prepare for at home before Maisie gets there (incidentally the workmen have at last started on the house).

Mummy had to work today so only got a short visit this evening but it was a lovely evening with the whole family together as Zach and Meghan visited too (they'd both only just recovered from  T in the Park - well almost).

Maisie was again good and stable when we all left showing good sats and heart rate with 100% oxygen. She looked very cosy all dressed up again;

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