and so the crying starts

Maisie had a long night working very hard trying to keep her oxygen saturation at an acceptable level and there has been a noted increase in Maisies's heart rate.

This could be due to a side effect of the sildenafil but most likely due to the low haemoglobin count in Maisie's blood. Maisie had another blood transfusion which in turn showed an improvement on her oxygen saturation. Maisie's oxygen increased up to 100% during the night decreasing back down to an average of 90%.

As Maisie was having a blood transfusion her feeds are stopped - causing Maisie to be hungry and so it follows a little grumpy just like her Daddy when he's not been fed. Maisie will be back on full feeds tonight.

Maisie needs all the food she can get as she is using a lot of energy breathing under her own steam. Maisie only had a weight gain of 10g in the last couple of days.

Maisie's head is the size of a credit card

Maisie had another routine eye test today which unfortunately showed that there may be a wee problem in her right eye. Maisies ROP is at stage 2 which is not serious yet. It may heal itself or may require laser treatment. The eye doctor will be back to have another look next week. If Maisie's eye needs treatment it may involve a holiday to Edinburgh.

When Maisie was having her eye test she protested by crying quite loudly - previous to this Maisie has only let out a few small squeaks. It is Great to know that her voice is working. Mummy loves that Maisie is crying

While getting her nebuliser this evening, something that Maisie dislikes there was some more crying that Daddy and Meghan heard - cute but not something that Daddy feels should be encouraged.