Saturday - not the best of days

Maisie's oxygen saturation was up and down like a yo-yo. Maisie's heart rate also dropped quite significantly several times during the day and her oxygen supply needed increased again (it can't be increased much more). Maisie's gas checks also showed that the levels in her blood were poor.

It was quite an ordeal for Maisie as on top of not feeling to good she had lots of test done. Maisie had blood samples taken, urine samples taken and even a lumbar puncture to take a sample of fluid from her back. All these test were to try and find out why Maisie was not having the best of days.

This was very upsetting and also very painful for Maisie but a slightly positive sign was that she fought against the Doctors and Nurses, her response shows that she still had strength in her.

The initial feedback from the samples shows there are no infections which is also a positive sign. The full results will be back in two days. Maisie has been given another course of antibiotics just in case.

Maisie also had x-rays to check her lungs which also gave positive results showing that they seem to be improving a little.

Maisie's tummy is very full from all the milk that she has been drinking and this could be putting pressure on her diaphragm making it difficult to breath so her food was stopped and Maisie was put back on a drip.

What Maisie needs is a lot of rest which wasn't happening with all the handling Maisie was getting from Doctors and Nurses. Ideally when Maisie is in this condition it is best to leave her alone but with the sats dropping all the time she ends up being handled even more. It's hard to get the balance right.

Some of what is happening could also be due to the side affects of the steroids but as this is an unknown factor it is best to do the test to try and find out what Maisie is up to.

It is not really known why Maisie had such a bad day. It's all part of Maisie being very ill and having Chronic Lung Disease. It's is one of those backward steps that is always hoped will not happen. Maisie is using all the strength she has in her and is getting tired.

All the fantastic Doctors and Nurses are doing all that they can to make sure that Maisie doesn't go back on the Ventilator.

By the time Mummy and Daddy left this evening Maisie was a little more stable, her blood gas checks were back to normal (well not normal but back to what can be expected from Maisie). Maisie was also back on a little of Mummy's milk and if this goes well then it can be increased slightly which will allow Maisie to get a dose of steroids which she couldn't have on an empty stomach.

Maisie was back to having a wee look around and was more alert which made Mummy and Daddy happier to leave her.

Maisie needs a rest 

Maisie will be having more regular gas checks for the moment to keep the Doctors and Nurses informed on how she is doing.