Friday, 7 December 2012

still sleeping

Maisie continues to sleep well but this is leading to a wee problem; Maisie seems to have lost her appetite.

Maisie is sleeping and the hope is that this leads to good growth. This will not happen if she isn't eating so much. Over the last few days Maisie is only just managing to eat her daily requirement which is not too good.

Daddy is waking Maisie to feed her which doesn't really please her very much, and she's not much happier when Mummy wakes her for a breast feed. While Maisie is awake we try to feed her smaller amounts more often.

It could be that Maisie doesn't have the same energy requirement now that there isn't a problem with her hernia. We'll have to wait and see what the dietitian has to say on Monday.

sleeping

Maisie did it again!

Maisie slept though most of the night just waking Daddy to have her nappy changed. She's a very clean baby - as soon as she dirties her nappy she lets you know it needs changed.

Maisie also spent some of the morning sleeping;

Happily sleeping

When Maisie is sleeping she's growing. 

Wednesday, 5 December 2012

physio came

Mummy and Daddy had a great nights sleep. Maisie slept from about 12.30 until 7.30am. It didn't feel natural but let's hope Maisie can do the same tonight.

Maisie has been eating well so her dietitian should be happy at the meeting on Monday.

Maisie's visit from the physiotherapist went well too. Maisie's progress is going in the right direction and everything currently indicates that Maisie's Physical and Neuro development are progressing normally.

Good News!

Tuesday, 4 December 2012

Maisie goes to work

Maisie went out for a walk with Mummy to see Mummy's work. There was a class on who enjoyed the distraction of meeting Maisie.

Then there was a meeting with her Health Visitor. The urine sample was not good enough to be conclusive on whether Maisie has an infection or not. As Maisie seems to be feeling better it was decided to see how she goes before taking any further action. Perhaps the sample taken at the hospital will show more.

Maisie was weighed and has only put on 70g this week, what's Amazing about Maisie'e weight today though is that it's exactly the weight the Daddy was when he was born (over 40 years ago).

Maisie is 9lb 7oz - 4.3kg. 

Tomorrow the physio is coming for a visit.

Monday, 3 December 2012

back to beautiful Embra

Maisie was at Kirkcaldy to get her Synagis injection to protect her lungs from infection. The nurses noted that Maisie had never looked so well. Maisie is already showing an improvement from having the operation.

And then it was off to Edinburgh to pick up Maisie's drugs from the hospital.

It was a lovely day even though it was very cold and so Daddy decided to treat Mummy and Maisie to lunch before heading back home.

It was a relaxing day. 

Sunday, 2 December 2012

honorable discharge

Maisie behaved very well overnight and had an honorable discharge mid morning on Sunday. Maisie once more has taken everything in her stride.

Bye bye and Thank you. 
It was decided that Maisie's sleepover should be postponed until next Sunday as the oxygen saturation reading may reflect the operation and not Maisie's usual state.

Mummy once more got no sleep and Daddy got little sleep. It's been a long few days.

Maisie got home early in the afternoon, Mummy had a shower and Meghan (who'd missed Maisie much more than she'll ever let on) got Maisie's milk ready for her feed. Daddy went to get Maisie medicines ready only to realise that they had all been left in Edinburgh!

After a few phone calls Daddy ended up going to Kirkcaldy to pick up enough supplies to last until morning - poor Daddy was exhausted, he'd been looking too having 40 winks himself before venturing out again.

There will be another trip to Edinburgh in the morning to retrieve Maisie's bag of drugs.

Maisie will still visit Kirkcaldy for her synagis vaccination but her meeting with the dietitian is being rescheduled.

Mummy and Daddy are looking forward to a good nights sleep.

Saturday, 1 December 2012

operation done

Amazing Maisie's operation was a success. The hernia has been fixed and Maisie is all stitched and glued up.

It was decided not to give Maisie a general anesthetic but instead give her a spinal anesthesia instead. This would just take the feeling away below the waist.

Even though Maisie had the anesthetic it did not stop her being a little annoyed and she pulled out her cannula that was in her leg. This meant that the operation took a little longer and she also needed a little bit of general anesthetic to help while they put a new cannula in.

Maisie was most likely annoyed because she was hungry. As you can see not being fed makes Maisie a little bloshie;

Maisie was not happy she couldn't have any milk! 
Tomorrow if all is well Maisie will be discharged in the morning and she can get prepared for her overnight stay back at the Victoria in Kirkcaldy.

A big Thank you to the surgeons, anesthetists and the rest of the fantastic team at the Royal Hospital for Sick Children in Edinburgh for helping Maisie and making us feel so welcome.

They all reiterated what we already know about My Amazing Maisie - she is very strong and a wee fighter
..............and of course very beautiful!