Thursday 6 September 2012

getting closer

Maisie is now 6lbs! 2.7kgs.

Maisie is eating well and growing well, 2 out of the 3 major things that Maisie needs to enable her to get home. The third thing needed is for Maisie's lungs to cope with a low oxygen supply.

"oh Mummy I think I've eaten too much"
Maisie's oxygen flow was down to 0.124 litres for most of the day. While Daddy was getting a cuddle from Maisie her oxygen saturation maxed out and her supply needed to be turned down to 0.08 litres for a while. This is Amazing progress.

Today the consultant started to talk about things that Mummy, Daddy and the team at the hospital will need to do before Maisie goes home. Mummy and Daddy are so happy that these discussions have started. We still don't know when Maisie will be coming home but to be talking about it is extremely exciting.

Maisie will need a lot of help to get home; a hearing test, her medications reduced, her oxygen levels agreed, oxygen installed in the house, a fire check, etc.

Maisie will have a few visits out of the ward around the hospital with Mummy and Daddy so that they can get experience out and about with Maisie on oxygen. There will also need to be overnight stays to see how they cope looking after Maisie. There is so much to do!

Maisie will have a Car Seat Challenge to make sure that she is comfortable and able to manage sitting in a car seat for a long period of time. Maisie is looking forward to getting her car seat this weekend when her Aunty Boo comes to visit with her cousins.

Maisie enjoys a story from her big brother

Maisie loves the outfit she is wearing in this picture. It was a present from Alfie, Olivia and Harry. Thank you  X.

1 comment:

  1. That's such good news about maisies weight and about the start of going home talk!!! Keep it up maisie xxxxx

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