Monday 24 September 2012

closer to home

Maisie's nurses have stopped adding fortifier to mummy's milk to help her grow, she seems to be growing just fine on her own. When Maisie gets home Mummy and Daddy will not be able to add the fortifier. Maisie needs to get used to this change.

Maisie's "top-up" feed has also been changed to the one Maisie will get if she needs any at home. All good preparation for getting home.

Today the Consultant ordered the oxygen concentrator that needs to be installed in the house so that Maisie can have oxygen when she gets home. Daddy is expecting a call later in the week to confirm a date for the installation - it should be in place by early next week.

Maisie's need to have oxygen at home as her lungs still do not work well on their own because of the Chronic Lung Disease. Maisie will have a concentrator in the house with a oxygen cylinder for emergency. To get out and about Mummy and Daddy will have to carry a portable oxygen cylinder.

very pretty in pink. 

1 comment:

  1. Another step closer which is so good to hear but I would wait a few days yet Maisie as it is so cold, wet and wild that this isn't a good time to come out of the nice teddy ward.Lots of love, Win x

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