a day of highs and lows

Maisie started the day off well; oxygen supply down to 32% at 3 litres of flow. A big improvement on the weekend. Maisie is certainly improving.

"can you see what's different about me?" 

That's right Maisie has pulled out her feed tube again! 

However what can't be seen from the photograph is that Maisie has taken a massive step forward and is back on the Low-Flow for her oxygen supply. Mummy and Daddy couldn't believe Maisie's improvement. My Amazing Maisie is truly Amazing today. 

Mummy is loving the cupcake outfit from Ireland

Maisie had a day of cuddles and sitting in her chair. Maisie loves being in her chair. Daddy played Maisie Scouting for Girls today which she really enjoyed listening.

A lot of prayers are being answered and hopefully Maisie is getting closer to coming home. Maisie has gone from 3 litres on the High-flow to 0.125l on the low flow. The Nurses put Maisie on the low flow at lunchtime and started at a low flow working up to a flow where Maisie was managing comfortably. To be on 0.125 litres is Amazing. 

Putting Maisie on the Low-flow is pushing her and it may tire her out but as Daddy writes this blog Maisie continues to do well on the Low-flow. 

Amazing Maisie taking time to rest after a successful day