Tuesday 16 July 2013

The physio is happy with Maisie's progress and says that Maisie is capable of doing all the movements required to move from lying to sitting, to being on her hands and knees, to being on her knees and to being able to stand - she just isn't connecting how to do it yet.

It's a little bit like when Maisie had to be taught to pick things up. We needed to show her the item, place it in her hand, close her hand around it etc.

It's just a matter of time and lots of homework and Maisie will soon connect it all together.


"I'll soon work out how to open this gate!"

Maisie and Daddy had another sleep over at the weekend which once again resulted in very little sleep. Maisie's oxygen saturation was high and so the nurses turned down Maisie's oxygen straight away. It was turned down to a flow of 0.1 litres. Maisie coped very well at this level and so the nurses tried Maisie without any oxygen.  All was well for about half an hour or so and then Maisie's oxygen saturation started to drop so it was back onto 0.1 litres.

"what do you mean I should be sleeping?
The alarms are keeping  me awake!"

Maisie left the hospital on 0.1l which is fantasic. The consultant will be happy when he sees her next week.

The wonderful weather is continuing in the East Neuk of Fife and so Maisie decided to she'd like to go to Elie Summer Fayre with Darcy. It was quite busy so Maisie decided that she be better sitting in a quiet corner of the pub garden.

Maisie was more interested in her toys than having a beer. 

Maisie - still more interested in her toy 


There were special visitors to see Maisie all the way from Italy. Matthew and Alison couldn't wait to see Maisie and once more she was spoiled with cuddles;

Alison waited very patiently for a cuddle but Matthew wasn't letting go! 

looking very stylish

Maisie tried Mummy's noodles this week in an attempt to vary her diet - although not successfully. This could be because Maisie still prefers porridge and wotsits or could be because she can't use chop sticks;

"it's no good Daddy, I can only hold one at a time" 

Maisie put the chop sticks to better use as drum sticks. 

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