loving all the attention

Maisie had a full day of attention; it started off with Daddy giving her breakfast so that Mummy could have a lie in. Then Daddy and Maisie had some playtime before her big sister Meghan gave her brunch so that Mummy could relax and have her breakfast.

Then Margaret and Wendy from next door paid a visit to play before Maisie decided that she could do with a quick snooze. This didn't last very long of course and then it was time for lunch - Mummy's turn to feed Maisie.

There was more playtime and a very brief rest before Aunty Eleanor and Uncle Carl popped by for afternoon tea. (Mummy made some lovely flapjack). As usual Maisie was spoiled by Aunty and Uncle, they brought Maisie a couple of wee toys to help Maisie with her playtime. They are a great size for Maisie to hold, she will really enjoy playing with them - Thank you very much.

Maisie had another short sleep as by this time she was overtired and starting to get a bit crabbit. Maisie is too interested in everything going on around her to sleep.

Maisie enjoying some playtime with her  sister

More food and then it was bedtime - Maisie had a lovely day. Hopefully tomorrow the weather will be better and Maisie will get out of the house for a walk.

It's a visit from the health visitor for Maisie on Monday where we'll find out how much weight she's put on.

the wee mouse again....

Guess who's turned up?  That's right, the wee mouse!

And guess who hadn't lost it? That's right,  Daddy!

Maisie's favorite wee mouse has turned up;

Maisie happily sleeping now that the wee mouse  is back! 

Mummy had it all the time...................... just by the side of her bed.

Maisie had a wonderful day. She got lots of cuddles from Mummy and then went out for a walk with Mummy, Daddy and Megan along the coast where she saw some fantastic views across the forth. Then it was out for afternoon tea with some friends. She really enjoyed seeing wee Katie again.

Maisie ate very well again today. It will be interesting to see how much weight she has put on when she gets measured on Monday. Maisie is meant to have 100mls per kg and she is currently having around 110 ml/kg with Mummys milk and a few spoonfuls of sweet potato on top of that. She's hopefully starting to get the growth spurt she needs.

Maisie is still sleeping well at night but not getting any sleep to talk about during the day. Two 15 minute sessions was all that she managed today.

"I know that you've changed me Daddy
but I'm telling you now - I'm not going to go to sleep!" 

Mummy and Daddy love the fact that Maisie is sleeping all night but are worried that they are getting too used to it and that things could change any day.

physio visited

There was good news from the hospital today - there is no urinary tract infection to worry about.

It was a lovely day in the East Neuk of Fife so Daddy took Maisie out for a walk along the coast with Megan for the first time in a while. It's been far too windy recently.

What Mummy dresses Maisie in to go out;

"really Mummy, do I have to wear this?"

This colour doesn't suit Daddy so Maisie has a different outfit; 

classy and fabulous! 

The physio visited Maisie today and said that she could see that Maisie had made progress. Maisie is now following things with her eyes, holding her focus when shown her toys which she wasn't really doing couple of weeks ago. 

Mummy and Daddy need to encourage different movements from Maisie when they play with her. Maisie needs to learn to reach out to take the toys she's looking at. She is happy to hold her toys if she happens upon them or has them placed into her hands but is not actively taking the toys to find out more about them. 

Playing with Maisie will now involve getting her to follow her toy to her hand with her eyes and then placing it into her hand so that she will learn to take things. Maisie will also benefit from help shaking the toy or putting it in her mouth. 

It is also important to regularly change Maisie's toys that she is playing with so that she can experience different textures and noises, something Mummy and Daddy weren't doing as they were using the same toys again and again just because Maisie liked them. 

Maisie was also shown some ways that she can be supported in her chair to help her sit in a better, to have a better posture and learn to use her arms. Maisie will be focusing on reaching out and using her shoulder and arms in a different way. 

Maisie is progressing well and is not causing the physio any major concerns however there is a little bit of work for Maisie to do before her next physio visit in 2 weeks. 

If Maisie takes small steps every day she'll get there one day! 

the wee mouse

As we know Maisie (or possibly Daddy) lost her cuddly wee mouse which was one of the toys that was a great size for Maisie and was much loved.

Unfortunately it hasn't turned up yet.

Daddy has looked around to find a replacement but to no avail. However it turns out that he wasn't the only one......

This morning a package arrived addressed to Maisie who with help ripped the package open with great excitement. Inside was a wonderful surprise - two cuddly mice and a wee lamb!

Maisie fast asleep with her new friends
(and yes Daddy knows she's wearing a Christmas outfit again!)

There had been some research done - the wee mouse that is missing only comes with the big sheep and cannot be replaced  on it's own but Maisie now has the next best thing.

Maisie now has another wee mouse the same size but attached to a blankie and also a bigger version of the wee one.

Once again Maisie has been extremely spoiled. Thank you very much to cousins Wayne, Caroline and Jenny for the presents they are very much appreciated. Daddy will try to ensure Maisie does not lose one of your presents again.

look at the difference.....

The dreaded sleep over.................Daddy does not enjoy the sleep over. It is lovely being back on Maisie's old ward and seeing all the nurses that looked after Maisie but there is not a lot of sleeping to be done by Daddy.

Maisie's oxygen saturation was quite good at 92/93% when she was sleeping on her current flow of 0.3 litres. As Maisie seemed quite comfortable the nurses tried Maisie on a flow of 0.2l. Maisie coped quite well for an  hour or so before her oxygen saturation dropped a little - just to around 90% but the consultants require it to be 92% or above.

Maisie's oxygen was put back up to 0.3l and it takes a wee while to bring the level back above 92%. Maisie then settled with good levels up to 94% and so the nurses tried to turn the oxygen down again. Once more after about an hour and a half Maisie started to struggle a bit so the oxygen got turned back up to 0.3 litres.

Anything below 92% sets off the alarm on the monitor and it's this noise that Daddy will forever have nightmares about. Every move Maisie makes causes her sats to drop and when she's right on the limit the alarm seems to continually sound.  Maisie doesn't seem to happy with the noise either and was awake extremely early this morning.

Maisie's oxygen level will continue to be 0.3 litres for the moment. It's great that it's not got worse.

When Maisie was at the clinic the other week they requested that Maisie should have another urine sample to ensure that the urinary tract infection she had before Christmas had cleared up (Daddy wasn't so sure it had). Daddy and Mummy have not successfully collected a sample since so Daddy enlisted the help of the nurses - a sample was collected and the results should be ready for Wednesday.

Maisie only just fits in the cot on the ward, look at the difference;

Maisie in her cot in August

and............

in the same cot Sunday night,  six months later
(it's the same owl too) 

There will be another dreaded sleep over in four weeks time.

what a lovely Sunday afternoon

Maisie: " So you're Mrs Brown"

It was a lovely Sunday afternoon  so Mummy decided to take Maisie out for some fresh air. As they were passing Maisie decide that she would pay Win a visit as although Maisie had heard so much about Win they hadn't actually met yet due to many various reasons. How wonderful to eventually meet.

Then it was back home to watch more rugby  - Maisie needed to see how Italy were playing as they will be playing Scotland next week and it would be nice to see them win a game.

Italy amazingly beat France which was a great result but doesn't give a lot of hope for next week. Aunty Manu will be very happy with the final score.

Uncle Douglas and Aunty Margaret came for a visit but Maisie was a wee bit rude and spent most of the visit watching the rugby.

Maisie ignoring Uncle like others sometimes do

It was an exciting end to the game which tired Maisie out so she took a well deserved nap. 

Now Maisie is interested in her comfy Uncle

 

Maisie and Daddy are back at the hospital for a sleep over to monitor Maisie's oxygen  requirements. Let's pray for Daddy's sake that there will more sleep than at the last sleep over. 

it's Daddy that needs sleep

Giving Maisie solid food is really increasing her appetite but this unfortunately is not very good for Daddy's sleep.

Daddy usually stays up to let Mummy get some sleep as she has to go to work and then he wakes Maisie for a wee feed about midnight which see's her right through til morning. Daddy finds it is better to stay awake as if he has a snooze before the last feed then he can't get back to sleep.

Only now that Maisie is growing she's feeding for longer and not only that but she's waking much earlier for her breakfast - Not so good for Daddy as he's getting less sleep but it is good for Maisie that she want's to eat more.

The orange food theme continues but is not going as Daddy  planned - thoughts were that it would bring out the ginger in Maisie. Daddy will continue to feed orange food to Maisie until he comes up with a new strategy.

Maisie was loving her hooded cardie until
she saw Ruby on Corrie wearing the exact same top!